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Thursday, April 22, 2010

good news/bad news

Here we are again - I can't believe how quickly the week has gone.  To join in the good news/bad news madness, hop on over to my friend the Missus over at http://revandthemissus.blogspot.com/  and link up!

Good news?  My shoulder is slowly getting better
Bad news?  I still need a lot more physio
Good news?  You should see Rob the hottie physiotherapist!

Good news?  I'm meeting my brother and SIL for lunch
Bad news?  Right at the Bear's sleep time

Good news?  My son can thread cotton reels like a champ!
Bad news?  We now have cotton reels all through our house
Good news?  They're very bright, and should, theoretically, be easy to see and not trip over
Bad news?  I said "theoretically"

Good news?  My crazy dogs, the Bear and I just went for a walk
Bad news?  They are the world's most stupid, insane-barking, embarrassing dogs
Good news? I love them anyway

Good news?  My kids' immune systems are getting stronger by the minute
Bad news?  It's because my house is an un-hygienic tip!
Good news?  I don't really care

That's me done for the week - head over to the Missus for the original good/bad news!

Wednesday, April 21, 2010

funny girl

Yesterday I was thinking about all the funny things my daughter has said over the years, and they really made me laugh.  So, in the spirit of sharing, here are a few of them!

  • At 2 years old, I told the Gig that she was "making Mummy very sad".  Only to be eyed up and down, and asked "Where are your tears then?".
  • This time she was 3, and not feeling well.  I put my hand on her forehead and said, in time-honoured Mummy fashion, "Cool as a cucumber".  Two minutes later, she put her hand on my forehead.  "Cold as a pumpkin, Mummy."
  • When picking up my 4 year old nephew L from his last day at daycare as my sister and her family were moving to another city, I told L to say, "bye Eastville*!".  L repeated, "Bye Eastville".  From the seat next to him, six year old Gig said "See you in Hell, Eastville!".
  • At 4, on a plane, reading the safety card,  (breathlessly) "It's true!  They do have slides!".  Yep, honey, and with any luck we won't be needing one!
  • Fairly recently, having heard her dad use the expression "gorillas" for thousands of dollars, she looked at her school fees and said "Whoa!  That's a lot of gorillas!".  Sadly, she was right.

I wanted to include a photo of my angelic daughter, but I'm stuggling with uploading one.  I have no idea why it won't work, but I refuse to be frustrated so I'm giving up.  Sorry.  Anyway, I hope my funny girl made you laugh!

Tuesday, April 20, 2010

flotsam and jetsom, bits and pieces, this and that

Ok, so my rage is ebbing away, slowly being replaced by acceptance.  I'm surprised that the diagnosis affected me so much, because it wasn't like we weren't expecting it.  I think what really got to me was having to talk other people through their own feelings about it, when all I got from anyone was "He's fine, look at so-and-so", or "All two year olds do that, stop worrying", or my all-time favourite "You need to take him to the park more".   For the record, we're at the park a lot!  So now I feel a bit resentful that no one listened to me when I was worried, but now I have to be the one to comfort them after my concerns were proven valid.  Anyway, life goes on.

The Bear is doing brilliantly!  Yesterday at playgroup he put two words together ("More bubbles").  That is the exact phrase we have been working on for three months, so it was very exciting and rewarding to hear him say it.  He also followed two sets of one-step verbal instructions yesterday.  Yay for increasing receptive language!

I've learnt a couple of things already.  One is that I prefer to descibe his condition as "Bear has Autism", rather than "Bear is Autistic".  (No, Bear is Bear, and he has autism.)  First and foremost, he is a beautiful, funny, affectionate little boy who loves the Wiggles and reading Spot books.  Oh, and he has autism.  The other thing I've learnt is how little the PDD-NOS label means, and how seldom we use it any more.  For one thing, no one knows what it is!
Believe it or not, we have a life outside of therapy!  This morning, the Bear and I met his auntie and baby cousin at the park.  We had a great time (sorry, no pics, forgot the camera and didn't have a chance to take any anyway) and can't wait to go back.  Next time, we'll go to a park with a fenced off play area ;-).

The Gig is looking forward to her Guide (Girl scouts) camp in a couple of weeks.  Next term, they're doing outdoor camping, and she really can't wait for that.  She is also giving a speech to her class about autism, as next Friday is Dress Differently for Autism Day, and she wants all her class to join in and help raise money.  I'm beyond thrilled about this, as only a couple of weeks ago she said she was embarrassed that the Bear can't speak, and embarrassed that he has autism, and she didn't want any of her friends to know. 

And Pacino has moved offices, and now has a larger office with a view of the river.  It's amazing how much that's been affecting his mood, and how relaxed he was when I picked him up last night.

So what about me?  Well, I finally got my hair done, after four months (my regrowth was lovely), and I've been to the physio for my shoulder.  It hurt, and I'll have to go back lots, but at least I'm doing something about it.

Right, well you're all caught up now, and there's silence from the Bear's room.  Hopefully I wore him out at the park this morning and he'll sleep...wish me luck.

Friday, April 16, 2010

rage, rage against the dying of the light

I am raging.  Raging.  I am angry.  I am so very, very angry.

It'll pass, and it's better then self-pity.

But for now?

Rage.

Thursday, April 15, 2010

good news/bad news

Here we are again on another lovely Thursday Wednesday.  You know, it'd be really helpful if someone could have a chat to the good folk at Greenwich, and whatever the US equivalent is, and ask them to work out a way that it could be the same day at the same time in Australia and America.  It's make good/bad news much easier!  Any volunteers?

Good news?  I'm having physio for my sore-for-seven-months shoulder this afternoon
Bad news?  It'll hurt, and I'm a big sook
Good news?  It's time to myself

Bad news?  The in-laws are here
Good news?  It's because they're here that I can go to physio
Bad news?  I made my MIL cry
Good news?  I think she finally understood the frustration of knowing my child had autism for 6 months, and being ignored and/or belittled for my worries until diagnosis day

Good news?  The Easter chocolate is finished
Bad news?  Der, see above
Good news?  Chocolate is my year-round friend
Bad news?  I have none in the house

Good news?  It's my puppy's first birthday today
Bad news?  He's still not reliably house-trained
Good news?  I haven't killed him yet

Good news?  The weather is finally cooling down
Bad news?  Nup, none.  Bring on winter!

That's about it from me, but do head on over to my fab friend The Missus, at http://revandthemissus.blogspot.com/  to check out the original and best Good and Bad News - and while you're there, link up and join in the fun!

Wednesday, April 14, 2010

i'm back, and i have news

So sorry about the complete absence of blogging over the past couple of weeks.  There's a couple of reasons - firstly, I was spending lots of lovely time with my children, secondly, I've been deliberately trying to break my very bad internet-all-the-time habit, and thirdly, I wanted to wait until I could share this news.  It's been consuming most of my waking thoughts lately, and a few of my sleeping ones as well.  But now, finally, we have...a...DIAGNOSIS!!!!!!!!

The Bear has been diagnosed with PDD-NOS (Pervasive Developmental Disorder - Not otherwise specified), which is an Austism Spectrum Disorder.  Essentially, it's mild autism.  Dr Wonderful, the paediatrician, was full of hope and support and encouragement.  The Bear is now eligible for some excellent services (and the funding to go with them), and we have every hope that his symptoms will improve.  He had a lovely time in Dr Wonderful's surgery yesterday, checking that all those pesky cupboard doors were working (they were), and that the taps were gushing water consistently (they were), and that the wheels on the cars were turning as they should (they were).  He was somewhat concerned, though, that the Little People Bus wouldn't sing its oh-so-irritating song like ours at home does (note to self - lose batteries or lose mind), but when he discovered that Dr Wonderful's computer clearly needed servicing by the Bear, he was happy again.  By the way, I'm quite pleased that he wasn't the child who wiped all of the good Dr's case notes by pressing buttons...there but for the grace of God...

He gave the Dr a beautiful high-5 on the way out, and made lovely eye-contact with him, which was great to see.

So how do I feel?  I'm not sure, actually.

We were expecting this diagnosis, so I'm not shocked.  It's still a big adjustment, though, and I think it'll take time to sink in.  For the moment, I am so completely overwhelmed by the paperwork involved that I can't really think of anything else.

Oh, by the way, we asked about the initial thoughts that the Bear had verbal dyspraxia - highly unlikely.  Apparently dyspraxic children have normal receptive speech, whereas Bear's is delayed.  Also, his stimming has been increasing, which is a trait of ASD rather than dyspraxia.  It's academic, really, as he'll need the same, if not more, therapy anyway.

One more thing - I'm very new to all of this, so if you are ahead of me on this pathway, feel free to let me know if you think I might have misunderstood anything the Paediatrician or therapists have said.

Over and out!

Thursday, April 1, 2010

good news/bad news

I'm a bit late this week with my good and bad news.  It's been a hectic Thursday Wednesday here, what with the Gig's school holidays starting and the Bear's OT.  But better late than never.  If you'd like to join in (and if not, why not?) with the good news/bad news fun, head on over to my good pal The Missus (and check out her adorable little guy at the same time) at http://revandthemissus.blogspot.com/ .

Good news?  The Gig's on holidays!
Bad news?  10 days of thinking up entertainment plans for 2 children of very different ages
Good news?  Both my chickens are home with their Mummy for 10 days :)

Good news?  I just found my favourite brand of nappies (diapers for my American friends) which we used in Europe and I looooved, at the supermarket - they are finally available here!
Bad news?  That's how tragic my life is, that nappies is good news
Good news?  They were on sale, too

Bad news? OT was a disaster this morning
Good news?  The Bear's having a break for 2 weeks over the holidays
Bad news?  None, really :)

Good news?  We have Hot Cross Buns for Good Friday, and lots of Fish
Bad news?  That Easter Bunny better get a move on with his her shopping!

Well, that sums up my week of news - I'm taking a bloggy-break until the long weekend is over.

Happy Easter everyone!